Top 5 Tips for Parents of Special Needs Children

From the Show: Healthy Children
Summary: Do you have a child with special health care needs? Are you getting the best care you can?
Air Date: 10/2/13
Duration: 10
Host: Melanie Cole, MS
Guest Bio: Dr. Jennifer Lail, MD
lail jennifer photo 2Dr. Jennifer Lail joined the James M. Anderson Center for Health Systems Excellence at CCHMC in September 2012 as AVP for Chronic Care Systems. Currently, Dr. Lail is leading the Care Coordination and Outcomes initiative at CCHMC and caring for patients in Complex Care Clinic. For thirty-one years prior, she practiced clinical pediatrics at Chapel Hill Pediatrics and Adolescents, P.A. with a particular interest in the health care delivery for children with special health care needs (CSHCN). She served as affiliate faculty in the department of Pediatrics at both Duke and the University of North Carolina. With a three-year grant from NC Title V, her practice served as a demonstration project for Medical Home Quality Improvements for Children with Special Health Care Needs. Implementation of practice strategies that improve care for children and youth with chronic conditions has been her particular interest, including development of clinical registries, care coordination programs, family engagement, pre-visit care planning, improved communications with sub-specialists and transition planning for CSHCN. Dr. Lail led her practice in Level 3 NCQA certification and re-certification at two office sites. She is a current member of the AAP's Council on Children with Disabilities, the Medical Home Project Advisory Committee, Quality Improvement Innovation Network, and the Specialist-Medical Home Leadership Team As and serves on the Medical Home Network Work Team of the Children's Hospital Association.
Top 5 Tips for Parents of Special Needs Children
Do you have a child with special health care needs? If so, you know it's not an easy road when it comes to all aspects of life. However it may raise some concerns specifically when it comes to the medical care of your child.

Are your child's needs actually being met by your doctor and other health care professionals?

What do you need to think about when navigating the health care system and keeping track of various specialists, test results and treatment options?

When is it appropriate to involve your child in his or her own health care decision-making?

Dr. Jennifer Lail joins Melanie Cole, MS, to help answer all of these questions and more in this informative segment.
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